The importance of consent: rant, rinse, repeat…

birth related risk assessmentMay I have a repeat rant today, please?  Because in the last few days I have had conversations with three different, unrelated and very caring midwives who are all caring for bright, informed women who are experiencing difficulties getting the care they want because the women have been subject to a risk assessment or screening test which has been carried out without their knowledge or consent.  And I just need to rant about this again, even though I have done so before, because I still don’t think that this is OK.  And when we encounter things that are not OK, we need to get them out in the open.

I suspect that most midwives and birth workers can easily imagine the scenarios.  One woman has fallen foul of the criteria for entry to the local midwifery-led unit (MLU).  The difference between her BMI and the BMI of someone who would be allowed (and, yes, what a horrid word that is in this context) to give birth in the MLU is so marginal that, if it wasn’t so tragic, it would be laughable.  0.5 – you couldn’t make it up, could you?  Another woman has been advised that she now (apparently) needs to have interventions or monitoring during labour and birth and also be in an environment that would not necessarily be her choice (although she hadn’t yet made up her mind) because, also without her knowledge or consent, a risk assessment has found her to be at risk of venous thromboembolism (which I have previously written about).  The third woman’s choices have now been limited because she has been found to be positive for group B strep as the result of her urine being screened for this without her specific knowledge that this was one of the things that it was being tested for.  She “thought the sample was being tested for protein and glucose like at other antenatal visits” and is adamant, having read widely on this topic, that she would not have consented to testing for GBS had she been asked.

I distinctly remember that one of the very first chapters of the very thick Effective Care in Pregnancy and Childbirth tomes that had just been published as I was beginning midwifery was about systems of risk assessment (Alexander and Kierse 1989).  Reading this chapter was a real eye-opener for me, as it caused me to understand that there was little evidence underpinning much of what I was being taught to do on a daily basis, and (even more importantly) that the act of assessing risk itself was an intervention which (oh, the irony) carried risks.

small__2386191721There can, I know, be fine lines between the informal kind of risk assessment that is an integral and inseparable part of the role of a birth attendant (otherwise why are we there – we don’t have the monopoly on making a good cup of tea! 😉 ) and formal risk scoring (for example in the VTE example).  The fact that both of these exist within the wider context of a culture that seems incessantly and sometimes obsessively focused on the promotion and prevention of risk further compounds the issue.  I just want people to ask women for their permission before the concept of risk is used to delineate and dictate what a woman may and may not do with her body.  Especially when so few of the things that done in the name of preventing or reducing risk are based on sound evidence that they really make a difference.

If only risk assessment did come with a risk warning…
Alexander S, Keirse MJNC (1989). Formal risk scoring during pregnancy. In: Chalmers I, Enkin M,  Kierse MJNC (1989). Effective care in pregnancy and childbirth. Oxford: Oxford University Press: 345-365.

photo credit: bandita via photopin cc

3 comments for “The importance of consent: rant, rinse, repeat…

  1. Helen
    July 16, 2014 at 2:51 am

    Very very well said Sara!!

    There seem to me to be some serious ethical and human rights issues here. I think that somebody should be made accountable for screening without consent!!!! ie the management not some poor midwife trying against the odds to cope in the current ‘corporate’ NHS.

    I am not sure how we can faciltate choice for women?? It has sort of become a nonsense, but ultimately women can choose to birth at home (or pretty much anywhere!!!) regardless, with the right to have a midwife present! But apparently not have the choice of an MLU.

    Like the rat race in general…..DO AS WE SAY OR YOU’RE ON YOUR OWN AND YOU WILL FACE THE CONSEQUENCES!!

    I truly despair Helen

    i

  2. Helen
    July 16, 2014 at 2:59 am

    BTW I am currently unemployed. I just couldn’t hack it in the NHS anymore, it was making me ill.

    Anyone any suggestions? I am open to anything as long as it is ‘gratis’.

    Thanks Helen

    • Anne
      July 17, 2014 at 3:10 pm

      Yes, very well said Sara. Im not despairing just yet…. but looking for a way to practice optimally

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